Letter from the Chair

Hello and Welcome to our first electronic newsletter. My name is Elaine Stevens. I am a lecturer in cancer and palliative care in Scotland and the chair of IANPC.

The IANPC was developed by a group of experienced palliative care nurses to promote high quality palliative care to all dying people regardless of diagnosis or place of care. We had our inaugural meeting at Palliative Care Congress in March 2010 but due to work and other commitments did not really begin to advertise the Association more widely until the end of 2010.

We have our 1st National Conference coming up in May and we look forward to seeing any members who can manage to come along. Information about the conference can be found later in the newsletter.

Our first AGM will be held at the beginning of the conference and we are seeking two new executive committee members. So if you feel you have the time to give to our Association please contact me for further information. Elaine.stevens@uws.ac.uk

We would also be delighted to receive information about palliative care initiatives for inclusion in our next newsletter or to post on our website. Information on who to send items to is listed at the end of the newsletter. I do hope you enjoy this first newsletter.

Yours



Healthcare Professionals for Change

In October 2010, a group of healthcare professionals began a public campaign to change the law in relation to “assisted dying”. The “Healthcare Professionals for Change” (HPC) feel that assisted death is not being fairly considered as a viable means of ending a patient’s life. Read more


A Round Up of Palliative Care Developments in Scotland.

Living and Dying Well - Scotland’s Palliative and End of Life Action Plan.

January 2011 saw the publication of Living and Dying Well: Building on Progress which discusses the progress that has been made in Scotland in relation to the actions and recommendations of Living and Dying Well: A National Approach to Palliative and End of Life Care in Scotland which was published in 2008. To read the full article and access links to the report click here


End of life care in prisons

Researchers at Lancaster University have recently completed an evaluation of end of life care in prisons in North West England. The aim of the study was to evaluate health professionals’ views about end of life care in six prisons in Cumbria and Lancashire. Seventeen prison healthcare staff and nine specialist palliative care staff from hospices local to the prisons took part in semi-structured interviews; sixteen prison healthcare staff also completed a questionnaire designed to measure knowledge, skills and confidence in relation to end of life care. A review of the literature was also undertaken.

The evaluation uncovered evidence of great compassion amongst healthcare staff from both prisons and hospices towards dying prisoners, and a willingness to adopt a flexible approach in order to meet the needs of individuals. A model of integrated care emerged from the study, whereby a cluster of three prisons and a hospice in one area have linked together to develop end of life care in prisons. However, there was also evidence that death in prison is often perceived to be something to be avoided, and the notion of a ‘good death’ appeared to be counterintuitive to some prison staff. Training, education and raising awareness emerged as areas requiring attention; although many prison healthcare staff possess relevant skills, the study identified a need for further training, particularly in the areas of psychological, spiritual and bereavement support. A number of recommendations for practice, policy and future research were made as a result of this evaluation.

A full paper detailing the study has been recently been published online and will be available in print form in due course: Turner M, Payne S & Barbarachild Z (2011) Care or custody? An evaluation of palliative care in prisons in North West England. Palliative Medicine; published online 14 January 2011.

Dr Mary Turner
Lancaster University


SKIPP- A NEW OUTCOME MEASURE FOR PALLIATIVE CARE

Dr Nigel Sykes,
Consultant in Palliative Medicine, Medical Director St Christopher’s Hospice, London SE26 6DZ

Rosanna Heal,
Quality Manager St Christopher’s Hospice, London SE26 6DZ

SKIPP (St Christopher’s Index of Patient Priorities) is a new outcome evaluation tool for use with palliative care patients. It explores patients’ perceptions of their quality of life, pain, depression and other key problems and what effect the care given has had on all these issues. More…


Preferred Priorities for Care, an update

The use of PPC continues to increase, the PPC process is being utilised in a wide range of conditions including renal failure, COPD, heart failure, MND as well as for frail elderly. Members of the National PPC Core Team are currently working on a revised version of the Accessible Version of PPC which will be beneficial to people lacking capacity and particularly those with a Learning Disability.

Following a recent Public Awareness Pilot conducted by, the PPC National Core Team, the Team have developed a PPC Guidance Leaflet and Poster for use to raise awareness of PPC. Further information and access to a downloadable version of the leaflet and poster are available here


1st National Conference
incorporating the AGM
The Quality of Palliative Nursing Care:
Where You Live Really Does Matter!
Lancaster House Hotel
Green Lane, Lancaster, LA1 4GJ

Thursday 26th May 2011
The Independent Association of Nurses in Palliative Care

Click here to download a copy of the full programme and booking form

If you would like to contribute to future issues of this newsletter please contact:
Mary.Holland@cumbriapct.nhs.uk


(c) 2010 Independent Association of Nurses in Palliative Care